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Down Syndrome Program News
SPECIAL EVERSOURCE WALK EMAIL May 2016
 
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Dear Friends of the Down Syndrome Program,

Members of our team are very excited about the upcoming Eversource Walk for Boston Children's  Hospital and TEAM DOWN SYNDROME.  Our program depends on fundraising to bring important clinical and research programs to our patients in order to improve the lives of individuals with Down Syndrome.

Please join us!
 

Sincerely,

Dr. Nicole Baumer and Dr. David Stein
Co-Directors, Down Syndrome Program
Boston Children's Hospital


 
INFORMATION ABOUT WALK!

The Eversource Walk, formerly known as the NStar's Walk, is back at the Boston Hatch Shell this year!

The Walk is on June 12th and we look forward to having a large team full of clinicians, staff, friends, patients & family members!

WANT TO JOIN US: IN PERSON OR IN SPIRIT?  

TWO WAYS TO JOIN US!

 

1)  JOIN OUR TEAM AND WALK WITH US ON JUNE 12
Create a
 personal page, do fundraising and come celebrate the day with our team! 

2)  BE A VIRTUAL WALKER -
Sign up, create a personal page and fundraise but join us in spirit that Sunday of the walk!


CAN'T COME JUNE 12th? YOU CAN STILL HELP BY SUPPORTING A WALKER AND MAKING A DONATION TO HELP OUR PROGRAM!

You can visit our page and choose any walker to support.
Read their stories on their personalized pages.
We encourage all walkers to find 21 folks to donate at least $21. Every little bit counts!
 
CHECK OUT LAST YEAR'S GROUP!  

Our team was so big we required two pictures!!!!  



QUOTES FROM TEAM MEMBERS ON WHY THEY WALK!

from Tate's mom:

"I’m walking because all the money raised by this team will go directly to the Children's Down Syndrome Program. Tate's adventure continues twice each year as a participant in this clinic, where he is exhausted during a day full of wonderful interactions with physicians, dentists, eye doctors, nutritionists and myriad other specialists. This program benefits Tate and our family tremendously, as well as hundreds of other beautiful and bright children living with Down syndrome"


from Allison's mom:


"Allie has an ever growing system of support at Childrens Hospital and especially through the Down Syndrome Program which will provide us with so much throughout Allie's childhood years and beyond!  We are truly blessed to have these resources available to us and hope that through our contributions and support that everyone who needs them has the opportunity to receive them."

 

HOW WE USE OUR FUNDS
 

The Down Syndrome Program relies on your support for clinic programming and many new initiatives to improve the lives of individuals with Down syndrome.  All of the activities outside of the clinic visits come from fundraising!

Fundraising supports so many important activities:
* complimentary Signing Times DVD for each new family
* free informative workshops
* Allen C Crocker Speaker Series
* Support groups; Complex Medical Needs
* the patient liaison position
* the Apprenticeship Program
* informative guides such as Behavior, Toilet Training, etc.
* Sleep Study social story book
Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.