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Down Syndrome Program News
Volume #2, Newsletter #16 February 2017
 
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DS Program Office
857-218-4329

Fegan 10 Front Desk
617-355-7025

DS Program Giving Page

Dear Friends of the Down Syndrome Program,

We are excited to share information about several conferences coming up this Spring.  Please join us!

Dr. Nicole Baumer
Director, Down Syndrome Program

Angela Lombardo
Program Coordinator, Down Syndrome Program


COUNT ME IN!    MDSC Annual Conference



March 25th at the DCU Center in Worcester!  


MDSC Annual Conference!

MIa Grossman, CCC-SLP - Promoting Early Language Development

Angela Lombardo - New Parent Workshop

Dr. Nicole Baumer - Sibling Panel

Come by and visit us at our Boston Children's information booth!

Visions of Community - Federation for Children with Special Needs

Our team members will be presenting at the annual conference on March 4th at the Seaport World Trade Center.  We hope to see you there!

Dr. Nicole Baumer - Session 1 - "Challenging Behaviors in Children with Developmental Disabilities"

Angela Lombardo, Dr. Jason Fogler, and Neal Goodman - Session 2 - "We’ve Got the Diagnosis and the Recommendations, Now What?"

Dr. Emily J. Davidson - Session 3 - "Family Wellness: Integrative Therapies to Relieve Caregiver Stress"

WANT TO JOIN US?  EVERSOURCE WALK FOR CHILDREN'S HOSPITAL

TWO WAYS TO JOIN!

1) JOIN OUR TEAM AND WALK WITH US ON JUNE 11th - Create a personal page, do
fundraising and come celebrate the day with our team!


2) BE A VIRTUAL WALKER -
Sign up, create a personal page and fundraise but join us in spirit that Sunday of the walk!

CAN'T COME JUNE 11th? YOU CAN STILL HELP BY SUPPORTING A WALKER AND MAKING A DONATION TO HELP OUR PROGRAM!

You can visit our page and choose any walker to support.  Read their stories on their personalized pages.  We encourage all walkers to find 21 folks to donate at least $21. Every little bit counts!

LEARN MORE:  EVERSOURCE WALK FOR BOSTON CHILDREN'S HOSPITAL


REVIEW OF CLINIC UPDATES

We will now be scheduling infants and toddlers ages 5 months - 2.5 years in the Thursday morning multidisciplinary clinic. We will be asking families to arrive by 8am to ensure time for check in, height/weight measurements and paperwork to be completed prior to the start of visits.

The front desk staff on Fegan 10 will now be responsible for scheduling visits for all of our patients on Tuesday and Wednesday afternoons.  When you leave your visit, you will schedule a follow up appointment at the front desk. If you are interested in setting up a visit, please call Fegan 10 front desk staff at 617-355-7025 to schedule your visit to our program. 

As always, visits will be customized to fit the needs of your child. Angela will be working with the Boston Children's Hospital Practice Liaison Program to help coordinate subspecialty visits at Boston Children's Hospital as needed.

Angela's focus will shift from scheduling appointments, to clinical care coordination and resource specialist support.  She will continue to provide personalized family support and guidance.

If you have any questions or concerns, please contact Angela.


Down Syndrome Program Office Number - 857-218-4329

Fegan 10 Front Desk Staff Number - 617-355-7025
CANCELLATION POLICY


Please reach out to us as soon as possible if there is a need to reschedule or cancel your visit.  We understand when unexpected conflicts and illness occur.  However, we have many families in need of an appointment, and when appointments are cancelled last minute, we are unable to fill the slots. 
Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.