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Down Syndrome Program News
Volume #2, Newsletter #17 MAY 2017
 
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DS Program Office
857-218-4329

Fegan 10 Front Desk
617-355-7025

DS Program Giving Page

Dear Friends of the Down Syndrome Program,

Members of our team are very excited about the upcoming Eversource Walk for Boston Children's Hospital and TEAM DOWN SYNDROME. Our program depends on fundraising to bring important clinical and research programs to our patients in order to improve the lives of individuals with Down Syndrome.

Dr. Nicole Baumer
Director, Down Syndrome Program

Angela Lombardo
Program Coordinator, Down Syndrome Program


JOIN "TEAM DOWN SYNDROME"

EVERSOURCE WALK FOR CHILDREN'S HOSPITAL JUNE 11th!


THREE WAYS TO SUPPORT THE DOWN SYNDROME PROGRAM!

1) JOIN OUR TEAM AND WALK WITH US ON JUNE 11th - Create a personal page, do fundraising and come celebrate the day with our team!


2) BE A VIRTUAL WALKER -
Sign up, create a personal page and fundraise for the walk, even if you cannot make it in person.

3)  SUPPORT A WALKER BY MAKING A DONATION TO HELP OUR PROGRAM!

You can visit our page to learn more and to read about our walkers' stories.

We encourage our supporters to find 21 folks to donate $21! Every little bit counts!

LEARN MORE:  EVERSOURCE WALK FOR BOSTON CHILDREN'S HOSPITAL





















Blissful Baby Infant Massage Class
Saturday, May 20, 2017 from 10 - 11:30am


Ages birth to pre-crawling   
(Note: Parent(s) and infant only due to limited space)

Boston Children’s Hospital WALTHAM location

9 Hope Ave, Waltham, MA   Conference Room A

We will learn the ancient art of infant massage in a quiet and calm environment. The strokes will be demonstrated on a doll while you practice with your own baby! You will learn colic holds, massage techniques, along with other ways to calm and soothe your baby.

Benefits of infant massage:

  • Relaxes and soothes babies
  • Deepens bonding
  • Promotes the strengthening of the digestive, respiratory and circulatory systems
  • Helps relieve the discomfort associated with gas and colic
  • Helps baby sleep better by releasing stress which builds daily from new experiences
  • Increases confidence and sensitivity to baby’s cues

Sheryl White is a Certified Educator of Infant Massage, Baby Signer, Reiki Master and mother of three. Her background includes a B.A. in Psychology and Corporate Classroom Trainer. She has received specialized Infant Massage training from the International Association of Infant Massage and she is a Certified Instructor of Joseph Garcia’s International Sign 2 Me Presenters Network, a babies and toddlers signing program. She has been teaching classes to parents, teachers, professionals and caregivers since 1999. Her role in these classes is to facilitate and help strengthen the connection between infant and caregiver through early communication and a heightened sense of listening.

RSVP REQUIRED (limited space)

Please RSVP to Sarah Cullen at scullen@mdsc.org or by calling 781-221-0024, ext. 206
REVIEW OF CLINIC UPDATES

We will now be scheduling infants and toddlers ages 5 months - 2.5 years in the Thursday morning multidisciplinary clinic. We will be asking families to arrive by 8am to ensure time for check in, height/weight measurements and paperwork to be completed prior to the start of visits.

The front desk staff on Fegan 10 will now be responsible for scheduling visits for all of our patients on Tuesday and Wednesday afternoons.  When you leave your visit, you may schedule a follow up appointment at the front desk. If you are interested in setting up a visit, please call Fegan 10 front desk staff at 617-355-7025 to schedule your visit to our program. 

As always, visits will be customized to fit the needs of your child. Angela will be working with the Boston Children's Hospital Practice Liaison Program to help coordinate subspecialty visits at Boston Children's Hospital as needed.

Angela's focus will shift from scheduling appointments, to clinical care coordination and resource specialist support.  She will continue to provide personalized family support and guidance.

If you have any questions or concerns, please contact Angela.


Down Syndrome Program Office Number - 857-218-4329

Fegan 10 Front Desk Staff Number - 617-355-7025
CANCELLATION POLICY


Please reach out to us as soon as possible if there is a need to reschedule or cancel your visit.  We understand when unexpected conflicts and illness occur.  However, we have many families in need of an appointment, and when appointments are cancelled last minute, we are unable to fill the slots. 
Our Vision

All individuals with Down syndrome are physically and emotionally healthy, engaged at their highest capacity in school or vocation, have meaningful family and social relationships, and are valued members of their communities.

Our Mission

To partner with families, interdisciplinary providers, and researchers to evaluate, treat, and investigate medical, cognitive, neurodevelopmental, educational, mental health, behavioral and social needs of individuals with Down syndrome from the time of diagnosis until transition to adult care.